Runnin On Empty

Firstly I'd like to start by playing Katy Perrys New Song "Unconditional" just for you. I heard it recently while M.E flattened physically and mentally  & it made me realise tha only place I can truly be myself is amongst other  M.E Sufferers. I dont have to pretend "I'm Fine"..I dont have to...well listen to tha track then i'll continue.......... So as I was saying I don’t have to listen to tha digs or sarcastic remarks, don’t have to see tha patronising facial expressions when I have tried to explain, or at tha opposite end of tha scale be grateful for someones martyrdom in understanding, yaaaaaaay! yes thanx its really appreciated, no, really your wonderful  and…oh just give yaself a knighthood and be done with it. It’s made even worse when its family and friends, it feels like tha ultimate betrayal doesn’t it?  people who always bang on about how they get it when they clearly don’t ….people that knew you when you were well, that ...

Hi,  its been awhile since my last blog, partly because my M.E marshallow brain is having trouble operating and we have to prioritise everything don’t we?   And before we can even contemplate doing anything remotely interesting…like writing a blog, we have mundane things to do like draggin our butts out of bed, easy for some, not so easy for others, especially when said butt feels as though its been weighted down with a couple of dumbbells…or is that the choc chip muffins?                                             When you have M.E every single day & every single thing is a challenge isn’t it?   for most healthy people its an automatic daily ritual given no thought at all, & I remember those days well. My normality was running a newsagents, I   got up, washed and dressed, walked the three minutes to work to arrive at 5am,   dra...

There are times for all of us i'm sure, where we wonder what tha hell we're doing, feel as if we cant keep battling on?............ I have a Mama Chill music blog and also a separate  Mama Chill health blog but often i cant seperate one from tha other, as in this case, so I thought I’d give a little update as to how things are going: Well tha album is coming along nicely, it won’t be released until early 2014, but tha vocals are very nearly finished  bar two trax and a choir to hire, & then tha 13 trax will be done…….but then each one has to be mixed & mastered as well as a non swear version done for tha odd track where I have a rantypants….Phew! As many of you know, I dont have  management or anything behind me so what has to be organised has to be organised by me.  Tha album will take tha same name as the M.E Charity single “Don’t Say Nuthin If It Aint Worthwhile” hopefully by calling tha album by tha same name as tha M.E track it will help bri...

Tha other day I walked into the lounge drinking my coffee when some dude on the television declared “Today I’ve got sticky nuts” .  As the coffee sprayed out of my nostrils, my first thought was “ yeah it has been rather hot today and I’m a bit sweaty too, but hey, not something I’d want to share with the nation”. He then proceeded to pick up a packet of pecan nuts, shake some into a pan, & add some  butter & runny honey,   ”Oh, THOSE kinda sticky nuts?” Its easy to  jump to assumptions, see what you want to see, hear what you want to hear, and none more so than when it comes to M.E.  As humans we have  automatic expectations so It’s very hard for us to understand differently to that, but having a chronic illness doesn’t mean you have to LOOK chronically ill, just as being disabled doesn’t mean someone has to be in a wheelchair, but its what we expect isn’t it? Before I became ill myself I probably thought exactly the same way,...

Hi,   Firstly, thanx to everyone for all the comments and messages, I’ve just had an M.E wobble that cemented my butt to the bed for a few days but I’m getting back & just taking it slow, this is my first FB post so thought it would be better via blog so that it reached more peeps. No time is ever a good time to have a wobble but It’s extremely frustrating that it came right in the middle of M.E awareness, There is so much I want to do, aswell as continue promoting the track and slideshow I also want to help share and promote everybody elses efforts. There is also loads of emails and questions to answer in my personal inbox aswell as my music profile. So if i haven't answered something yet, hold on to your hats, i'm-a-comin. There’s also sharing last Sundays radio event on my music page, Vibe presenter Nia was Brillaint and gave plenty of space and  prompts so that we got in Invest In ME, Lets Do It For ME  & even The Big Sleep. There’s a...

So in the run up to MAY 5 th & the single I’m releasing in aid of M.E awareness month “Don’t Say Nuthin If It Ain’t Worthwhile” I’ve started putting  together a slideshow of photos to tell a story as I did with the last track “I Cant Stand Tha Rain”  But the idea for it started many months back & I thought it would be a cool idea to get some celebrities on board. As some of you will know I’ve invited those of you with M.E to email me photos of yourself with your mouth covered, (you still have til 20 th April) and there’s been some brilliant ones coming in so far.Tha idea was to have some celebrity photos slotted in of them doing tha same thing as way of showing support.  I started politely emailing management companies to various celebrities with an explanation to what I was trying to achieve  & asked whether they would consider their clients getting involved, but then I realised that nobody was ever going to respond…..and guess what?....none ...

Ane Brun-Words                                   Well peeps, I will be stepping back from the digital age from here on, I will however keep to my word and finish what I started as far as the M.E single to raise awareness goes including the slideshow to go with it, so remember if you would like to be a part of it, send me your photo with mouth covered and how long you’ve had M.E via private inbox, by Friday 5 th April, I’m not lookin for   professional shots, it can be on your mobile phone, its about giving those with M.E who want to help raise awareness a chance to take part , you can use humour or just your hand to cover your mouth, its all good. Huge Thanx to those of you who have already sent your pics, they’re awesome ;) The track along with the slideshow on May 5 th will be my last Facebook posting for the foreseeable future, & due to circumstances out of my control with ad...