Posts

Minister of Dickery ?

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Some of you may remember that back in June, I went on a writing spree.?.....yes another one, I've lost count of the letters and emails written over the past thirty years in the very pin head size of a chance that someone, somewhere,  would see sense and  stop the abuse and manslaughter of  the sick and disabled. I also raised a number of specific concerns, the treatment of Sick and disabled under the present Government  via D.W.P, increase in Mental health and pushing people over the edge under the present  system which is ultra disablist despite their spiel.  I also criticized the loaded questions both on paper and also at assessment stage that are impossible to answer honestly and fairly  and yet people are forced to do so ?  As for  Myalgicencephalomyelitis (M.E)  I stated that  while M.E has been recognized  as a complex chronic disabling illness with multi symptoms & listed by the World health organisation as a neurological disease since 1969 at this stage it cannot be med

It ain't Football?

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I have to say I'm not really surprised  by the latest Football debacle  and news of this European  Super League, the club owners have got away with far too much for far too long so this has  been an opportunity waiting to happen.  I fell in love with football as a young whippersnapper before girls went to games let alone played, in junior school there was a boy I fancied that was a Celtic fan but he wasn't ready to be interested in girls, in fact he'd pull that face that little boys pull whenever girls are mentioned, the one that says "I'd rather eat worms than talk to you"  I'd watch  as he and the rest of the boys gathered to talk football on a Monday morning before class began and so I hatched a plan to follow Celtic too in the hope he'd like me, sadly it didn't work but h aving spent Saturday afternoons watching Football on TV with my Dad & Grandad  I  went on to follow my home team Watford (Graham Taylor will always be the best Manager Wat

The M.E Name Blame Game?

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Before I start, let me just say that I can only write from my own personal experience as an M.E Sufferer of 30yrs, while hopefully many of you will relate? Everyone's experience and levels of illness and views on the subject will be different.........Right, now grab a biscuit and I'll begin ..... It seems whenever M.E/CFS appears anywhere there's outrage of varying degrees, and yes I still prefer to use a dot in-between the M & E as was originally often used ...BUT,  originally  before that, even though the word Myalgic encephalomyelitis (M.E)  existed, some believe as far back as 20's/ 30's the name  the media and medical profession  referred to it as in the 80's before the word M.E was widely known was "Yuppie Flu" ... was I hacked off? Not really, I was confused more than anything, It was always reported   as an illness that posh people with high flying jobs in the city were going down with, I came from a broken home, lived on a council est

It's Not A Round Robin?

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As those who follow will know, I always publish an end of year article  ? Although I refuse to call it a round Robin, because firstly? It's not, and secondly I've never understood why anyone would want to know that back in March Tarquin gained a distinction in his nose piccolo exam? Or that more recently Annabella was photographed on social media with a pimple and has had to go into trauma counselling to get over it? So now we're clear its not a round Robin, let me  kick this off with a Merry Christmas....although let's face it, it's more just Christmas minus the Merry? I'm a great believer that out of the most terrible things that happen in life, there are lessons to be learnt ? (Like always purchase an extra pack of toilet rolls when shopping just in case? ) The problem is, from my own personal view of life the past year and a half it has been overwhelmingly full of non stop lessons on loss and betrayal, people and places not being what I thought they were, tr

All I Want For Christmas Is An Arm ...?

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It's often hard to understand, feel, see or even believe things unless they're happening to you? I know up until my own illness with M.E, from the moment I got up in the morning everything from grooming to breakfast to getting to work was all done on automatic, without thought, taken for granted, And then M.E struck and with the primary symptom being exhaustion there were days where I barely had enough energy to shuffle to the edge of the bed and that was it, all energy and breath were spent, it was and still is an extremely tough lesson to learn and brings truth to the saying "You never know what you have until it's gone" Energy and breath are a pretty big deal when you're trying to live?  But what if there was something you never had in the first place?...... It was while perusing Twitter that I stumbled upon two individuals, Tanya Cattran   and Fraser Mcewan  both with the same dream & goal of raising £10.000 to allow them a  Hero-Arm  . For those of y

A REALLY Good Morning ?

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We couldn't get a parking space near the shops, so had to park at the top of the road and walk down, "Oh well, at least it's a nice day" my mother said, detecting my annoyance. The thing is, when you have M.E even a few steps can seem  like the Green Mile. Anyhow, as we began the walk down the residential street an elderly gentleman was making his way towards us on a zimmer frame with his just purchased newspaper tucked under his armpit, we moved into a single file to let him pass but said "Good Morning"  he looked up from the pavement and looked me directly in the eyes, paused then smiled and nodded "Good Morning"   The following week the same thing happened: "Good Morning, Nice day for a stroll?" I beamed "It is" he replied, before adding " Can I ask you something?  why did you stop to say Good Morning to me the other week?  "Er... I guess because we're old School and it's just about being friendly an

Please Don't Do A Michael!

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Wednesday 6th May 2015  started out a day like any other. As someone in ill health, I was sitting at my desk in my bedroom working on the laptop, think of todays  Isolation/Lockdown only 24 years worth courtesy of M.E ?  My mother had just entered the bedroom when my phone rang, it was my sister Michele, I did my usual cheery " Hi Smell, you okay?" but she sounded awkward, she asked if mum was with me, at which point Mum came over and sat at the end of my bed thinking I was about to hand the phone over. Then my sister said  " Stacy, I have some bad news"  I immediately thought it was my Dad, I mean  we tend to think  life goes in order don't we, even if that's totally false? which of course it is.  As I felt that  sickening fight or flight adrenaline start to course through my body and braced myself  for   what she was about to say next, absolutely nothing could've  prepared me.  " I'm sorry, it's really really bad news" "Go on