Posts

Showing posts from February, 2012

Hope?

Image
                           I wonder what happens when you run out of hope? A bottle of pills? A length of rope? I can only hope my hope never ends I’ve seen it  online with my virtual friends Their witty posts amongst my feed.  And their “life with M.E” blogs that  I subscribe to read And I comment and like or forget one or both Coz my brains up a tree clinging on like a sloth It seems everyone's holding on by a thread Passing hope to each other like daily bread Then someone notices a missing face Witty posts and blogs gone without trace. So we rally like social networking troops Our mission to search and get to the roots Of our friends disappearance that raises concern, Maybe they’ve had an M.E crash and burn And they’re laid up in bed with all energy gone None to reach for the laptop let alone switch it on And when they come back in a week maybe two We’ll te...

******** 93 **********

Image
Cant stop chasing a dream just coz I’m told, Cant stop holding onto youth while growing prematurely old, Feels like I’m 93 today although they say I’m looking fine, Wanna know why I’m not working yet, it happens all the time But I’m all jumbled up inside, haven't got the words, Haven't got the energy to make myself heard, Skin like peach hiding withered fruit, the vegetable disease with an invisible root, Dribbling and choking, unable to swallow, a rollercoaster ride from winning to wallow, A white knuckle nasty silently screaming, want to keep living, want to keep dreaming. But I can't run away from the slow lingering death, my legs won't allow it and nor will my breath, it's my dying day, 93 years old, that's how it feels when M.E takes a hold. Keep on keepin' on. Back before Elvis.                                      

I Cant Stand The Rain

Image
I took tha Ann Peebles classic & re-worked it into a rap about life with M.E to try and raise money for tha charity "Action For M.E" & it can be purchased off tha Album "Nobody wants to know ya when ya Nobody" http://itunes.apple.com/gb/album/nobody-wants-to-know-ya-when/id453894988 http://www.actionforme.org.uk/ Having survived it for 20yrs so far & counting the only thing that gives me the strength to keep facing the battle is being able to make music, because via music it also allows me a platform to raise awareness of this awful illness. Then there's humour, i pretty much laugh at everything, and lets face it, its either that or cry...oh i do that too believe you me, but i try to stick to the laughter if i can help it. I've always had a black comedy kinda sense of humour, which under the circumstances comes in pretty handy. One particularly bad day i thought i was dying, there i was curled up on the floor while My mum rang tha docs , and as i...