Runnin On Empty

  May is M.E awareness month, after 33 yrs of living with it & campaigning I kinda hoped we'd be somewhere by now where awareness wasn't needed, and I wouldn't be here again boring the pants off you, but unfortunately that's not the case,  there's still alot of ignorance surrounding M.E (No we're not a little tired)  and there's still no treatment and no cure, so here I am once again  to hopefully give those of you unfamiliar with the illness a very brief insight that I hope will help, next time you hear it mentioned. M.E known by it's medical name Myalgicencephalomyelitis (Yes I know, let's just stick to M.E)  is still classified by the World health Organisation as a neurological disorder, It's often referred to as a        "lingering death"  because quite frankly  that's exactly how it feels. The illness is a complex chronic one that affects the whole system,  physical and also sensory, from a whole body exhaustion, ...

To say I'm devastated  by the Election result would be an understatement, but unless you're Sick/Disabled or negatively impacted I don't expect anyone else to get it, and they clearly don't.  But this wasn't just political, it was personal, If you voted Tory you are no friend or family member of mine, you really aren't, if you genuinely love and care about someone you don't throw them under the bus. You see, if you voted Tory you gave them a thumbs up that it was okay to bump off 120.000 Sick and Disabled like me via Corporate manslaughter and continue doing so, I could've been one of those 120.000 and still can become a statistic at any point. This isn't just about numbers and statistics though, this is real people with families, Mums, Dads, Sons and Daughters, bullied, humiliated, stripped of any dignity & finally killed?  If you don't believe it do some research, we live this life on a daily so we know first hand what's happening bu...

I've  been  a bit miffed by the recent TV and social media campaign  #WeAreUndefeatable but miffed has now turned to anger because once again I smell a very large underhand rat? On it's website and social media platforms it states  it's " A campaign supporting people with health conditions to be active through the ups and downs and celebrating every little victory"  ?    I could  almost hear the strains of Jerusalem playing in the background as all sick and disabled around the country stand shoulder to shoulder  with fist clenched to their heart with pride?......Someone pass the Kleenex I'm about to blub, but that's because sadly, once again I believe the public are being duped that this is being done in our best interest, while the actual Sick and Disabled amongst us know it's just another shafting.  Call me a cynic...no, please do?  but I believe this to be just another sneaky attack on societies most vulnerable to sa...