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Showing posts from April, 2012

Me VS Giant Orange Space Hopper

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So today I went to tha hospital to see a consultant & get the results on my huuuuuuge belly better known as the Giant Orange Space Hopper, being called  three days after a CT scan is never a good sign, so I’d prepared myself for the worse case scenario, I’d even played out the scene in my head. The consultant would sit there, legs crossed, stroking his chin before saying “ If there's anything you want to do, I suggest you do it now, and if there's any lose ends you need to tie up….” Yes I’ve probably watched too many hospital dramas, but you can never be too prepared. It wasn’t so much a consultation   but more a gathering, the consultant, another man that sat by his side, he could’ve been tha  ventriloquist working the consultant for all I know, and a nurse….oh, and me of course. When the consultant mentioned the word Cyst I immediately burst into a Homer Simpson WOO HOO! Before adding “I can just leave it to shrink of its own accord then huh?”  G...

GRRRrrrr A Symptom Of M.E ?

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As I’m gettin older I find myself increasingly GRRRRRRR…ing at things  that bug me hugely, like why are there so few English speaking people in England now? Wherever I go  from shopkeepers to hospitals to restaurants, a simple request often turns into a game of charades as I try to make myself understood, even English kids seem hell bent on speaking Jamaican slang these days and when I try to talk to anyone on the phone I  get put through to India. But nothing quite annoys me more than the word “Depression” being added to the list of symptoms for M.E & Fibromyalgia.  Why? Because its NOT a symptom, and having lived with M.E/Fibro for getting on 21yrs I think I’d damn well know. Let me start by saying that “Depression” is a serious illness in its own right, I have had family members and many friends suffer terribly over the years and for this reason, I've researched and self studied for years so that I knew what I was dealing with so that I could help i...

Easter Surprise?

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So I was at the hospital today and the consultant casually said  " So apart from M.E & Fibromyalgia you're generally a  fit, healthy and well person, yes?"  I looked at him surprised, wondering if the date was wrong and it wasn't April 5th but April 1st Fools day instead?  "Er...no, not really" I replied, " M.E and Fibromyalgia present  with lots of horrible symptoms every day, so i'm unable to work, I get constant infections....." At which point he interrupted with "yeah yeah yeah, ok" and then carried on talking about something else.....20 years down the line and  still  no clue about M.E/Fibro, still as rudely dismissive of it and it just goes to show that despite what we're being told, we are no further forward. So I guess we just carry on fighting, we keep on going, business as usual  eh? Happy Easter my friends may chocolate smother you...not literally obviously....unless you're into that of course, in which case ...