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     M.E.......

    There's Only One Mode In My Abode.....& That's       Sloooooooooooooow. xxx

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Ender Soaps?

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Let me start by wishing you all a Happy New Year as we come together for the first Column of 2017 with our dried fruit and peppermint tea? .....Yeah right, coffee and custard creams it is then?  Well holy moly! like many of you I've been struggling with "Happy" after being hit with this cold bug going around since before Christmas  and  then yesterday afternoon I had a major M.E relapse....Things can only get better right?  it's not evident that "Happy" is doing any better on the TV front either  is it? What on earth is going on with the writers? I grew up watching Coronation Street and later Emmerdale & Eastenders with my mum, there was also hollyoaks of course and they had storylines and people that we could relate to, it was still escapism, watching someone elses life unfold on screen, but it was pretty relaxed  family viewing. But fast forward and they've all turned into action busters, violence, murders, death & explosions, hardly chil
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M.E isn't N.I.C.E?

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Ever since the N.I.C.E (National Institute for Health and Care  Excellence) debacle over delayed publishing of the new M.E guidelines I've struggled to write this article, in fact I've buried my head and done everything possible to avoid it and I didn't know why? Until now that is, and while what I'm about to say is  incredibly hard to write, I feel I owe it to myself and the M.E community and to all those still uneducated and unaware of the magnitude of abuse dished out to sufferers by the medical profession, media and wider community. For many sufferers the abuse also came from family members and  so called friends and in many cases still does. I have suddenly realized, as an M.E sufferer of over three decades that I have become conditioned to the abuse, the government deemed it acceptable and therefore the rest of  society normalized it  and eventually I accepted it too. I'm not sure when exactly, there was no definitive moment, facing physical and mental abuse j
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M.E? All Talk, No Action?

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Originally I was looking to write a piece for M.E awareness month in  May, in fact I started writing it three times and then deleted it (no mean feat when your primary symptom is exhaustion?) but I just kept getting frustrated by it all, and as I wrote I kept thinking what's the point? 31 yrs in,  still campaigning, still ranting, still writing and still have M.E? The injustice to M.E sufferers continues, I believe those with Long Covid are being treated in a similar fashion, and the  DWP have already been told not to accept Long Covid as a disability?  Maybe they need to refresh their brain cells as to what disability actually means?   "A physical or mental condition that limits a persons movements, senses or activities" you only have to type into a search engine "Explain the word  disability" for a whole heap of explanations to pop up and yet the DWP have a ( secret not so secret) list of illness they've been told  not to class as a disability? Everything
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