Bed In A Box
I Kinda had to smile when I saw this bed, because it
immediately
reminded me
of M.E …..
& yes I've
always found
things funny
that I possibly
shouldn't but
then it’s only
retaining a sense
of humour that's
seen and continues to see us through some very bleak times huh?
Living with this illness is often like living in a box, very
rarely is it propped up or open, very rarely do we get to see the world around
us in its everyday normality, if we're lucky we just get glimpses, and teases.
Most of tha time the lid is down, often suffocating us in a dark confined
space.
My bed is in a square room, its like a bed in a box, much
bigger than this picture obviously, but tha feeling of being trapped within a small limited life is still
tha same, especially when night falls and we can no longer see chinks of light
coming in from tha window, silence is torturous as all we can hear is our slow
exhausted breath inhaling and exhaling, and while our body is weighted down
with concrete, our mind is still soaring like a
kite in a strong wind, darting all over the place, unable to be controlled
or brought to stillness.
Tha reason I smile at this picture is because its familiar,
I can almost see myself in that bed, just lying there waiting for that skinny precarious
branch to snap at any moment and shut tha box lid back down on me again as it
does so frequently with M.E, almost on a daily basis if I’m honest. Because that’s
what it feels like to live with tha various levels of M.E that can change from moment
to moment doesn't it?
For those of us lucky enough we can often shuffle away from
tha confinements of tha box for a short
while, I'm not talking going up town to paint it red , more like to tha fridge for chocolate ;) until suddenly without notice & for no apparent reason or as payback
for something we did yesterday or tha day before we’re violently sucked back onto that bed unable to
move to wait for that lid to fall shut again.
And then I thought how cool
would it be if Ikea manufactured some of these M.E beds, with a few electrical
buttons attached that could simulate exhaustion, concrete legs, foggy head and such forth and we could
give those who are ignorant to our world just a very small taste of what it is
like, But if all else fails & they still didn't understand, it would give tha ignoramous's a short sharp electric shock up tha jacksy, what do you reckon? Back Before Elvis, Stay Blessed ;) xxx
XXX
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